P R O J E K T 2 5 0 1|
[Most Recent Entries]
Below are the 20 most recent journal entries recorded in
Projekt 2501's LiveJournal:
[ << Previous 20 ]
[ << Previous 20 ]
|Tuesday, May 8th, 2007|
Hi everyone....I am extremely sorry to say that today I had the DNR (Do Not Resuscitate) form activated. This means that if Frank's heart stops or if he stops breathing, that they will not shock him and they will not try to prolong his life. This was the most difficult decision I had to make in my life, but I assure you, if you could see Frank, you would agree. This email is very hard for me to write, and I'm sure harder for you to read. The doctors and nurses have been suggesting that we come to a decision, and we have. It's just not fair to him and he is in too much pain. No one wants him to suffer anymore. He has also lost the use of his right arm, so now both of his arms are paralyzed. He also is unable to swallow and unable to speak. I have only been able to get a few words out of him and his oncologist has said that she was expecting him to be responding more by now. She said "he's just not thriving". When he is more awake, the tremors are constant now and he is still just moaning in pain. Otherwise, he is sleeping. I just know that if Frank could be in the room somehow and see himself, that he would not want to live like this. Even if he gets over his 3 infections, he will have "no quality of life" as they expect his current tumor to progress over time. I have consulted Frank's family and his friend Kelly who is a nurse, and they agreed. Pretty much everyone knows now. Now all we can do is wait. The doctors are going to try to keep him at Frankford-Torresdale Hospital as "in-patient hospice" but will move him soon to an actual hospice facility if need be. Luckily this place is about a minute away from his home. I am so sorry that this news has to reach you through a myspace update.... but it would be too hard for me to call everyone and explain over the phone. I am truly sorry.........I don't know what else to say but I just want to thank you all for your continued support.......I'm sorry........
|Sunday, May 6th, 2007|
Well, still not good news......he has 3 infections. Possibly the shunt, they're not sure yet...still doing blood tests. I talked to Dr. Kennedy today. He's still unable to swallow but Dr. Kennedy said she'll probably start the chemo pills again tomorrow. Not sure how since he can't swallow but we'll see.......I think she is thinking about a feeding tube and she said "I was trying to avoid sending him to a nursing home with a tube". I also don't understand how he could possibly go to a nursing home in this condition. Maybe she's thinking if he gets well enough to?? I don't know...that's the last place I want him to be. Kennedy also said he should be more alert than he is because now they stopped the other pain killers and only have him on Dilaudid and Atavan. I told her that he said a couple words for me yesterday and she sounded surprised at that. I don't know if he has any clue what he's saying or what's going on.......part of me thinks he does, part of me thinks he has no idea. I hope he has no clue for his sake. She's not too worried about his chest congestion. She said they did another ct scan of his chest and the mucus in there looked a little more "fuzzy"......i don't know what that means....she also said "we may have to make some decisions this week." He's still in an enormous amount of pain, at least seems to be.....today he was moaning like every 2 seconds, breathing is labored.....i don't know.......i have a lot of questions that i need to get straight in my head and write down because every time I talk to her i clam up because i'm really trying to grasp what she's saying or we interrupt each other and then i forget what i was going to say......now i can't think straight because the fucking tv is blaring.......ok i'll end this here. Hope to see some people around the hospital this week so that I'm not there alone in case any "decisions" do have to be made...but we'll see.....i know everyone can't be there 24/7....
|Saturday, May 5th, 2007|
Good news: The nurse said that his fever had gone down and was 98 and that his blood tests came back negative so it's not his blood that's infected, thankfully. They also drained the shunt today and they only got a very small amount of fluid out, less than they expected I guess...I was trying not to feel the bump on his head but i did once and it seemed like it went down a tiny bit. He is still extremely uncomfortable and miserable and still groaning every couple seconds, and then seems like he's asleep for a minute, then it just starts all over again. Although today he was a TINY bit more alert...he kept trying to say something but I don't know what...I couldn't make it out...and then at one point (i just BARELY heard him) he said "what happened" and i explained everything that was going on, just in case he understood.
Bad news: They stopped the chemo pills. I don't know if this is permanently, I highly doubt it, but the nurse said that he can't take pills since he can't swallow anything and the pills are HUGE, i've seen them. They are more afraid of him aspirating/choking or stuff getting into his lungs and causing pneumonia. He already sounds like he has a lot of phlegm in his lungs and it sounded like he was trying to cough but doesn't have the energy...then before i left he started sweating again so i asked him if he wanted the fan on and i heard him say "yeah" so i put it on...then i asked the nurse about him sweating and she said his fever may be spiking again but that they would check it in an hour since they had kinda just checked it.
that was pretty much it today...like i said, i hope that he will be able to start the chemo pills again soon since it was having a positive effect on the tumor.....i don't know.....we will see. day by day.
- Lauren Current Mood: stressed
|Friday, May 4th, 2007|
As of 5:00pm...(it is now almost 8)
He has/had a fever of 103. His saturated oxygen level got down to low 70's (73?) Should be 100. His white blood cell count is 20 and it should be between 4-11, so since it's high that means his body is fighting infection, but it's not good for it to be that high. So yes, he has an infection. They're not sure what is infected. Earlier today he had a cardiologist, pulmonary doctor and infectious disease doctor look at him and he has had blood work done and when I left (at 6:30) he was getting a CT scan of his chest. He is not doing very well but I did get him to say a couple words ("what", "yeah") through his moaning. Right now they have him on 4 different antibiotics.
Just hope that he doesn't have to go on a ventilator because the doctor doesn't think he will bounce back from that, if that happens......but I think if they come to us and say that he has to go on a ventilator, that we will say okay becuase......why not?
So, everyone is still trying to do everything that they can.
- Lauren/Projekt 2501 Current Mood: tired
Looks like he's staying at Frankford-Torresdale over the weekend (still room 2287), and being moved to Chapel Manor on Monday. I asked the social worker Cathy if she knew anything about how Dr. Kennedy thought he was doing physically and she said that Dr. Kennedy said he was responding to her questions correctly yesterday morning....but when I went in yesterday he was asleep but had to be woken up to take his medicine and didn't seem to be doing very well to me, so I don't know. His breathing seemed a bit shallow and he is still in a lot of pain when he wakes up. I was trying to get him to eat because if he does not start eating soon he may very well end up on a feeding tube which would be horrible (and we have already had that experience once, last October). Now that I know the tumor "looks better" I'm expecting to see some progress physically but it does not appear that way, at least not yet anyway. Well, at least the fever is gone and he is not sweating profusely anymore. Hopefully soon things will be on the up and he will get some physical therapy at this dreadful place...
I'll let you know if anything changes. Here's the info:
Chapel Manor Nursing & Rehabilitation Center Incorporated
1104 Welsh Rd
Philadelphia, PA 19115
- Lauren/Projekt 2501
|Wednesday, May 2nd, 2007|
Good news! Here is the update!
okay, the oncolgist said the tumor "looks better" so THANKFULLY it isn't any worse. she said that she really wants him to get out of bed and have some physical therapy because she thinks that just laying in bed is making him worse and i agreed and said that when he is more alert, he is constantly trying to move around and sit up, etc. i don't know how much better the tumor is sizewise, she just said it looks better.
the next step is (unfortunately) back to a nursing home. once again i asked the social worker to send him to whichever place is closer to frankford-torresdale hospital. as long as they do physical therapy with him i think that will be good.
On the other hand, Frank also has a tiny air bubble where the shunt is, so dr. kennedy called dr. judy (neurosurgeon from penn that did frank's craniotomy and shunt) but he is out of town and will be flying in tomorrow, she said. so i don't know what's going to happen with that, if they're going to have to do any surgical procedures or not...
so that's all i know. Frank is still in A LOT of pain and today when I saw him his face was red and his eyes were teary and he would be awake for a minute, then asleep for a minute and when he was awake he was still yelling and moaning in pain....but eventually he fell asleep. dr. kennedy sounded like she wanted to keep my feet on the ground, to not get overly excited and to just be rational about it. we're not totally in the clear but at least we know the tumor looks better. so now we're onto getting frank out of the hospital and into the nursing home for physical therapy and hopefully his pain will lessen. that's it!
- Lauren/Projekt 2501 Current Mood: exhausted
|Monday, April 30th, 2007|
IMPORTANT FRANK UPDATE
I talked to Dr. Kennedy today around 4pm. She said they are going to do another MRI either tonight or tomorrow morning. Since I haven't heard from her yet I'm assuming it will be tomorrow morning. She said she would call me with the results but I'm going to go there as soon as I wake up and get ready. She said that if the MRI shows that the tumor is progressing, that they are going to have to resort to "comfort measures". A few people I have told this, have asked me what they mean by that. It basically means that this chemo is their last try and if it does not work, they have done all they can and have exhausted every possibility. There is no sense in being mad at the doctors, especially Dr. Kennedy, because she is really amazing and I know she cares about Frank very much. So please, keep Frank in your thoughts and prayers, as all of you have been. Thank you so much.
All the best,
Lauren/Projekt 2501 Current Mood: crushed
|Thursday, March 1st, 2007|
NATIONAL MECHANICS // PHILADELPHIAWhen:
Thursday Mar 01, 2007
at 9:00 PMWhere:
22 South 3rd Street
Philadelphia, PA 19123
NATIONAL MECHANICS // PHILADELPHIA Click Here To View Event
|Monday, January 8th, 2007|
Projekt 2501- Running Eternal Remix by Mark Jackson!
Just added.........The FULL Version of Projekt 2501- " Running (Eternal Remix by Mark Jackson) This is the new remix which has been the most requested and just uploaded today!....PLEASE tell a friend and rate and comment on the song (s) . We have lots more music of course and alot of new material not heard yet and on seeing how this goes and if people are happy I will add other songs in the upcoming weeks. Hope you enjoy the tracks!
all the best,
Frank Current Mood: happy
|Friday, December 22nd, 2006|
We would very much like to wish you and yours the best during this Holiday season. Have a great holiday and stay safe.
Lauren, Wolf & Frank
Projekt 2501 Current Mood: productive
|Tuesday, October 24th, 2006|
Frank Update #87634987652398660
He is possibly being moved to Physical Therapy Rehab tomorrow so he won't be at Frankford-Torresdale Hospital anymore. The place he's going to is called Moss Rehab. The address is:
60 East Township Line Road
Elkins Park, PA 19027
there's the link. apparently there is more than one, but obviously he will be at the one in Elkins Park (which happens to be where he was born! weirrrddddd.....)
but he's still doing great. he was sitting in the chair when i got there tonight and has been walking around A LITTLE BIT. it's not 100% definite that he is going there tomorrow but they're going to try. as soon as i can update on whether they brought him there or not, i definitely will. i'm going to be going to the hospital around noon tomorrow. they say he is going to be there for about a month but that obviously isn't definite either because he's doing so well already, so we'll see!! it all depends....
ok, that is all. tschüss!
- Lauren/Projekt 2501 Current Mood: loved
|Friday, October 20th, 2006|
|Wednesday, October 18th, 2006|
just wanted to let everyone know......
frank is off the ventilator. they took him off this tuesday morning. no more ventilator, no more feeding tube. he is breathing on his own. oxygen is 98-100%. last night he was still coming off the drugs slowly but surely. he couldn't talk very well but he was trying. i am leaving in a little bit to go see him today.
thank you everyone........
- Lauren Current Mood: anxious
|Wednesday, October 11th, 2006|
email i sent to kat, one of frank's friends...
he's the same. still on a ventilator and feeding tube. still sedated. still can't respond. otherwise, i have no idea when he'll be home and no idea what's going on with the blood clots besides the nurse saying that "they're smaller" but i know it's not by very much. it could take months for clots to dissolve. i know he won't be in the hospital for months, they can send him home w/ blood thinner pills and what not.....but that's about how long they take to dissolve, especially since his are so substantial. they tried to take him off the ventilator today but it didn't work. his oxygen went down to about 90. i'm very worried too even though i know he seems to be doing better...but then again it seems like he's only doing better because of the machines he's hooked up to...it's hard to explain this to his friends because i want everyone to know the truth and to know everything that's going on but there's really no gentle way to do that. i would post more updates but there really haven't been any changes in his condition. if anything happens, good or bad, i will definitely post about it. otherwise i'm just busy attempting to go to work and school (which isn't working too well since i'm on the brink of a panic attack every time i have to go somewhere....not literally of course). i bought a book from barnes & noble called "help me live" and it's written by a cancer survivor. you should look into it, it's a really great book. she basically compiled all of these peoples opinions that are either cancer patients or cancer survivors, about what to say, what not to say and what to do and what not to do. when i come home from the hospital at night i just wanted to find a book to read and help me relax that has to do with the most important thing going on in my life right now and not read about a diet or a true crime story...i got that and another little book called "hope" (i forget what the rest of the title is) and that has lots of quotes from people about cancer. the worst part is leaving the hospital at night knowing i won't see him until the next day and that he's not in my hands...anyway, basically, his oxygen is around 96 right now. they want it to be above 95 so technically that's good.....but like i said....he's still on the ventilator, still sedated, still on the feeding tube. i'm just going to copy and paste this email into lj and myspace instead of writing everyone two or three times. hope to hear from you soon....
- Lauren Current Mood: sad
|Monday, October 9th, 2006|
He is doing somewhat better. His oxygen level is now fluctuating between 93-96 and that's with a decrease of the ventilator (down to 60...i don't know what that means i just know it's at 60). His color looks better in his hands and face. They're weaning him off the ventilator and sedatives but they want to keep him sedated because he's probably going to be in a lot of pain when he wakes up and they don't want him to rip out his tubes or anything because he won't really know what's going on when he wakes up. Anyway, just wanted to fill everyone in. I think he's doing better but the nurses say he's doing "the same" so...We definitely appreciate people visiting. If anyone needs a ride, let me know. My schedule is kinda nuts right now but I'm sure we can work something out. Thanks everyone...
- Lauren/Projekt 2501
|Tuesday, October 3rd, 2006|
P2501- Running on the american idol top 10 list!
Page 1 of 5
This Week Last Week Weeks on Chart Artist Song
1 149 4 Robert Farmer KEEP ON RUNNING
2 71 8 Reason Dreamz
3 9 4 Robert Farmer DREAM THEME
4 1 les cherubains de chari Nothing Matter Now
5 3 Brendy Dancing Prayer 6 78 10 Projekt 2501 Running
7 25 8 Michele Ippolito Destination
8 96 10 Alphalyphe Rise and Follow
9 114 5 apokolypsse sistem glytch
10 2 les cherubains de chari Just New Goto www.idolunderground.com and kick it up to number 1!
|Thursday, September 21st, 2006|
[P2501] just added....
Just added.........FULL and Free Versions of a couple of our tracks including "Running" plus a new remix! which has been the most requested....All I ask from you...is that you also tell a friend and rate and comment on the song (s) you download . We have lots more music of course and alot of new material not heard yet and on seeing how this goes and if people are happy I will add other songs in the upcoming weeks
ps. i just uploaded them let me know if the myspace servers added them or not....check later if they are not available
|Sunday, September 17th, 2006|
As you know I am now fighting a battle with brain cancer..I would like to take a step not just for me but for alot of peoples futures... I am asking all my friends who are also fellow musicans to "donate" a song to me.....So that i can produce a compilation that a 100% of the sales go to the American Cancer Society.... www.Cancer.org I feel that with as involved in music i am...just something as small as this could make a difference in someones life...maybe even my own.PLEASE CONTACT ME IF YOU ARE INTERESTED AND I'LL BE SURE TO GET BACK TO YOU ASAP. If you are not a musican or if you know a band/project you feel would be interested, please forward this messege along to them..I hope to get some feedback and some great music as well.... and if you dont want to wait for the cd then please just go here......
thank you for your time,
*feel free to repost this* Current Mood: hopeful
|Wednesday, September 6th, 2006|
Broken Smiles (Broken Instrumental Version) and all the others are still avaable for download.
IMPORTANT MESSEGE FOR FANS
So as many of you know I have been diagnosed with brain cancer..i love the warm wishes I have gotten...it has helped me more thenyou know...and in that time have had alot of inquiries of where to obtain some of our music. In which case I have just uploaded FULL and Free Versions of a couple of our tracks including "Running" which has been the most requested....All I ask from you...is that you also tell a friend and rate and comment on the song (s) you download . We have lots more music of course and alot of new material not heard yet and on seeing how this goes and if people are happy I will add other songs in the upcoming weeks. Its been a hard battle but hopefully by you listening to our music...your positive thinking can help me even more.
all the best and god bless,
*you may repost if you would like* Current Mood: content